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Cindy's Multiple Myeloma Blog

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Let the Death Panels Commence
A few weeks back I’d read about the drug Avastin, something about its approval maybe being pulled back. It’s a very expensive drug prescribed as a last-ditch effort for breast cancer patients. It’s not a cure, but it provides an extension of life and quality of life in the hope (that America has no shortage [...]
Pain in the Gas
Gas is the biggest pain in the —gut. When my spinal cord first started atrophying, I began building up gas. I just knew I had a tumor in my abdomen. It turned out to be – gas. That was over two years ago. I even went to the emergency room one time. But this was [...]
Coping With Surviving
I’ve got to get back into “this” blog. When I so naively started it, I said “this blog” was for sharing my experience with Multiple Myeloma (MM). This blog wasn’t to be about opinions or feelings, but rather just medical news. Well, that’s still what I want this to be, but pardon me if I [...]
Obamacare Taking On Water
Obamacare taking on water By: Jeffrey H. Anderson Special to the Examiner 05/28/10 9:34 AM EDT As they followed one another off the political cliff in voting for the health-care overhaul, Democratic senators and representatives comforted themselves with their own self-created myth that, although ObamaCare was horribly unpopular as a bill, it would prove to [...]
Not Time to Throw In The Towel
Good news, I guess, at the doctors the other day. My markers seemed to either stay steady or improve. Although my doctor ordered the m-spike test, the lab missed it. Since the other markers were OK, he’s not worried. As a matter of fact, instead of seeing him in 3 months as usual, I will [...]
Life Is Such A Journey Every Single Step
Oh boy. I’ve been in one learning experience after the other lately, or so it seems. First of all, tomorrow I have my second baclofen pump refill and then after that appointment I have my three month check up with my oncologist. I am anxious to know the results of my labwork, to see whether [...]
First Intrathecal Pump Refill
I had an intrathecal pump implanted on November 4, 2009 for muscle spasticity in my legs. I used to take 80mg of Baclofen pills every day for this symptom, but they were not very effective and I was sleeping nearly 24/7 with that dose. Lioresal is Baclofen in liquid form. The pump is programmed to [...]
Distractions & Surviving
I’m struggling with my spinal issues. I’m having a really tough time but that’s how it goes. When you have an illness or disability or both, you’re going to have ups and downs. I know that. It’s kind of like, ‘deal with it.’ OK. I will. I am. I have been staying in bed nearly [...]
Continuing and a Haiti Repeat, For My Son That Is
This cold weather has got to go! I’m blaming my lack of umpf on the cold. I’ve canceled my PT session this week and the following. I’m taking a break until I get my pump refilled and the medicine dosage increased. Maybe by then our temperatures will rise and I’ll be more eager to cope. [...]
Pride is Like Bad Breath
“Pride is like bad breath: everyone knows you have it but YOU!” [author unknown] I had to share this. I heard it watching one of those Sunday morning ministers. It was too icy and cold to get out today–for me anyway. The minister was a fairly good speaker. This quote caught my attention. I’m more [...]

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